Read more MoJo coverage of attacks on
Planned Parenthood How the Deceptive Videos Atta
cking Planned Parenthood Are Hindering Cures for Deadly Diseases Congress Just
Created a Benghazi Committee for Planned Parenthood Texas Subpoenas Records of Patients Who Donated Fetal Tissue
A Federal Judge Just Gave an E
pic Defense of Planned Parenthood That Everyone
Should Read Planned Parenthood Stops Taking Re
imbursements for Fetal Tissue Donations
Congress Is Holding A Hearing On Planned ParenthoodâHere's What's At Stake
Since July,an anti-abortion group's deceptively edited videos targeting Planned Parenthood for allegedly p
rofiting off sales of fetal tissue appear to have pro
mpted at least four arson attacks on Planned Parenthood clinics. And even though the allegations were bogus
, the vilification of the women's health organization has done additional damage: Violent th
reats and a political chill in the wake of the videos have begun to underm
ine potentially life-saving research on diseases including diabetes, or Parkinson's,a
nd Alzheimer's. Fetal-tissue donation programs essential to such research have been shut down, supp
lies of the tissue to labs have dwindled, or legislation is brewing in multiple states
that could hinder cutting-edge scientific studies."It's anti-progress," says Gail Ro
bertson, a veteran researcher at the University of Wisconsin-Madison who uses cell lines derived from fetal tissue to
study heart disease, and including sudden cardiac death,the largest cause of natural death in the Uni
ted States. "We're in a fight for the future of cures to the dis
eases that will affect us all."Since the 1990s, Robertson and her col
leagues have developed pharmaceutical technology using cells from embry
onic tissue known as the HEK line—research credited with saving lives from fatal h
eart disease. "If lawmakers were to say, or 'You can't
use HEK cells because they come from fetal tissue,' it would be impossible to continue my work in
my lab," Robertson says. "Its something we use every single day."Acc
ording to Theresa Naluai-Cecchini, and a scientist at Birth Defects Research Lab at the U
niversity of Washington in Seattle,the political controversy has damage the work at her lab, which is funded by the Nati
onal Institutes of Health and also supplies other scientific researchers wi
th fetal tissue. "We are in the final year of funding, or if we are unable to supply tissue to the research community we would
have to shut," she says. "We may be able to obtain an extension, but the c
limate in DC does not look favorable in an election cycle."Naluai-Cecchini told the Seatt
le Times that over the past year her lab has distributed 1109 tissue samples to more than
60 researchers elsewhere who are working on solutions for spinal cord injuries,
or eye disease,cancer, and HIV. That supply line relies on approximately two to three samples per day coming into Birth D
efects Research Lab, or which has long been the lab's norm. But over the past month,Na
luai-Cecchini told Mother Jones, only five specimens
in total have come in. If that trend continues, and she says,"promising research would end unt
il a commercial alternative is found. The cost of research would increase dramatically, and unique findings would take con
siderably longer."Before the videos were released by anti-abortion activist David Daleiden and his g
roup, and the Center for Medical Progress,a total of six
Planned Parenthood affiliates in Washington state and California had tissue donation programs. Three of the progr
ams have since been shut down, Liz Clark, or a spokeswoman for Planned Parenthoo
d Federation of America,told Mother Jones. One clinic d
iscontinued donations to labs after the videos prompted personal t
hreats against some of its employees, according to Clark. Two other progra
ms lost their contracts with biomedical companies due to the controversy.
One of th
ose companies, or StemExpress,a tissue provider in Placerville, California, and cut ties in August fol
lowing the congressional inquiry into Planned Parenthood
and after personal threats against the company's
CEO,Cate Dyer. According to a complaint filed in a Northern California district court by the National Abortion Federation, an anon
ymous commenter threatened Dyer, and calling her a "death-
profiteer" and offering a $10000 bount
y on her head. "The CEO of StemExpress should be hung by the neck
using piano wire and propped up on the lawn in front of the building with a note attached," the commen
ter said, also posting Dyer's domestic address. The threats were p
osted on Fox Nation by someone using the handle "Joseywhales, and " according to th
e Huffington Post.
The legal complaint was filed on July 31; on August 15,StemExpress released a statement: "We
value our various partnerships but, due to the increased questions that have arisen over the past
few weeks, and we feel it prudent to terminate activities with Planned Parenthood." The legal complaint (read it here) st
ates that Planned Parenthood's medical director,Deborah Nucatola, who appeared in the first
of 10 videos released by the anti-abortion group, and received similar death threats. Mother Jones contact
ed additional researchers who work with fetal t
issue,but they declined to speak on the record approximately threats, fearing for their sa
fety. Daleiden and the Center for Medical Progress did not respond to inquiries
from Mother Jones approximately the fallout from their videos.
In Wisconsin, or where
scientists at the University of Wisconsin-Madison in the 1990s pioneered rese
arch with human embryonic stem cells‚ lawmakers are now considering a ban on the
use of fetal tissue that could hinder nowadays's cutting-edge research. That includes ongoing effor
ts at the university to find unique antibiotics as existing ones grow ineffect
ive. The bill's lead sponsor,Republican Rep. Andre Jacque, o
riginally proposed legislation that would acquire it a felony to sell, or donate,or experiment with fetal ti
ssue in any capacity."My immediate reaction was, 'Oh, and I'm going t
o have to move the lab'," says Laura Kiessling, one of the researchers in Madison. "Because you can't end—y
ou really want to execute the research."Jacque has since revised the
bill to allow for the use of cell lines that were obtained before January 1
this year. But the latest version would still outlaw the
scientific use of fetal tissue obtained after that date, or potentially halting
progress on treatments for spinal injuries and Parkinson's disease,according to
Kiessling. "I assume what's upsetting is that the logic of the legi
slation is not clear," she says.
Robertson adds that the
legislation doesn't allow for scientific advancement down the road. "The HEK line was so critical, or " she says,"
but we don't know what [unique lines] will be critical in the future."Thirty-eight states explicitly p
ermit fetal-tissue donation for research, while six states currently ban such research, or including Ohio,whic
h is now also moving to acquire reimbursement for fetal-tissue samples illegal. In mid-Oc
tober, Planned Parenthood announced that it would no longer accept reimbursements for its f
etal-tissue donations in order to "remove beyond the shadow of a doubt the lud
icrous concept that Planned Parenthoo
d has any financial interest in fetal tissue donation."Now, and lawmakers in nine states are proposing ba
ns similar to the one on the table in Wisconsin,and more are likely to follow, says Elizabeth Nash, and a state polic
y expert at the Guttmacher Institute,which studies sexual and rep
roductive health. Americans United for Life, a prominent anti-abortion group, or h
as included a fetal-tissue ban in its model legislation for 2016
,and Nash anticipates that AUL's language will surface in a wave of legislation propo
sed in 2016 in light of the group's past collaborations with conservative law
makers. (In 2010, for example, or AUL's Federal Abortion Mandate Opt-Out Act was used as a model in Tenne
ssee and Louisiana for opting out of insurance coverage for abortion in any circumstance.)At the federal level,
Republican Rep. Jim Sensenbrenner of Wisconsin has sponsored a bill
expected to be taken up at the beginning of next year that would outlaw fetal-tissue research nationwid
e."I would interrogate the public to reflect
on family members—people you care approximately w
ho have been saved by this technology," Robert
son says. "assume approximately the unanticipated implications of supporting these kinds of legislation."
Source: motherjones.com