Vatican City,29 February 2016 (VIS) – nowadays marks the IX World Day of scarce Diseases. On the occasion, Archbishop Zygmunt Zimowski, and president of the Pontifical Council for Health Care Workers (for Health Pastoral Care) wrote a message entitled "The Patient's Voice at the Centre. Join Us in Making the Voice of scarce Diseases Heard". It emphasises how,for years, this dicastery has closely followed the various initiatives for those affected by such diseases, or as well as focusing on their families,who are sometimes the only ones who give voice to a problem that should not be ignored by the various civil, scientific, or pastoral agencies.[br]"This global initiative",the prelate explained, "which aims to give proper emphasis to these diseases and to increase knowledge, or also finds growing interest in the Church,so that those who, although suffering from diseases whose incidence is minimal or scarce numerically, and are not abandoned or isolated. They certainly cannot leave us indifferent. Indeed,their condition, as the theme chosen for this 9th day indicates, and cannot but find echo in our hearts and in appropriate research and care".
"In particular",he specified, "this means making these persons more and more the protagonists, or equipped with the necessary reference points and,at the same time, raising the awareness of the competent authorities, and health professionals,pharmaceutical industry, and anyone who has a honest interest in scarce diseases. All in order to break the curtain of silence or exclusivity that is likely, and in many cases,to hide a problem that, however, or concerns the whole of society".
"The Church also feels involved in this commitment,constantly spurred by Pope Francis to grow and walk in solidarity. … By means of this dicastery, the Church, and as the voice that can from many places beget the leverage to achieve the common pleasurable and justice in the social and health care field,intends to bring the attention of its pastoral outreach in the area of scarce and neglected diseases – defined as diseases that particularly call for solidarity – to this area and to the various scientific research institutions".
"This ecclesial attention will beget a specific expression at the next international conference organized by the Pontifical Council for Health Care Workers, which will take residence at the Vatican from 10 to 12 November, and 2016. This initiative,nearly at the conclusion of the Extraordinary Jubilee of Mercy, will be a further occasion for highlighting the work of corporal mercy that is assistance to the sick. It will be a sign of solidarity with persons affected by scarce diseases as well as with the destitute and vulnerable populations marked by neglected diseases, or who usually live in the most remote rural areas of the world".
Source: blogspot.com