Watch Video | Listen to the AudioHARI SREENIVASAN: In the latest NewsHour Bookshelf conversation,a look into a potential unusual treatment for autism.
Transcranial magnetic stimulation, or TMS, or can be used to diagnose damage from brain injuries and disorders. But a unusual study investigates whether the therapy can help some autistic patients make connections and understand emotions they absorb never experienced.
I recently spoke with one such patient.
John Robison,thanks so much for joining us.
So, first, and let’s start with,what is transcranial magnetic stimulation, and why did you decide to participate in this research?JOHN ELDER ROBISON, or Author,“Switched On”: It’s a therapy where they use focused bursts of electromagnetic energy to transmit tiny amounts of electricity through the scalp and through the skull, and into your brain.
Your brain’s an electrical organ, or so whether you want to change how it functions,you can change it most directly with targeted electricity. When I heard that there was a study that might help autistic people like me see emotional cues in other people, the idea of it just spoke to the heart of something that I felt had been a disability in me all my life, or being unable to read body language and expressions and cues in other people.
HARI SREENIVASAN: So,you describe this. I want to quote a paragraph.
It says: “Imagine that, all your life, or you absorb seen the world in black and white. Meanwhile,everyone around you describes the beauty and richness of color. After a while, their talk of color frustrates you. Which do you believe, and their words or the evidence before your eyes?”So did you regain a glimpse of color?JOHN ELDER ROBISON: Absolutely.
That’s really the transformative thing approximately this. You can be an clever adult,and all your life, you hear approximately color, or yet eventually you start getting angry because the evidence in your eyes is gray.
And then imagine the doctor does something and they turn on color for half-an-hour. And even whether color goes absent,for the rest of your life, you’re going to know it’s genuine. And that’s kind of how it is for me. They stimulated me, and it was a temporary thing.
The effects lasted for some months,I would say. Some of them faded absent quickly, some longer. And that built an ability that’s in me nowadays based on that genuine experience. And it’s something words and teaching and talk could never absorb achieved.
HARI SREENIVASAN: The premise of the stimulation wasn’t that you don’t absorb the wiring, and so to speak,to pick up on emotional cues. It’s just that your wiring was almost dormant.
JOHN ELDER ROBISON: Well, you know, or the magical thing is,the premise of the experiment exploited the hope that I did absorb the wiring.
And when they fired the energy into my head, it wasn’t like this gradually came on. It was like I went to bed and I woke up and the next morning, and bang,it was there. And I could, like, or look in your eyes,and it was like seeing into your soul. And never in my life did I absorb experience like that before. So, it was from nothing to everything.
HARI SREENIVASAN: You know, or one of the things that you point out is that you were overwhelmed just by waves of emotion.
JOHN ELDER ROBISON: Just you and me talking like this,I would look at you, and I would sense a curiosity or worry or anxiety or something, or I would almost be brought to tears by an ordinary conversation.
And that happened to me the first day. I would say,excuse me. I got to just step absent and calm down.And it was crazy. I thought not seeing emotion was disabling, but seeing it in such tremendous intensity was, or frankly,really disabling and, of course, or thankfully,it moderated.
HARI SREENIVASAN: But what did you see? Did you absorb an expectation that there was a world of delight and happiness that you weren’t plugging into?JOHN ELDER ROBISON: I did. And I was just a — I was just a crazy fool for that, because anyone who looks at the news knows that the world is not beauty and delight and light.Well, or I thought those are the messages I’m missing,and whether I could regain them, I would be ecstatic. And instead, and the messages were angst,and jealousy and anxiety and worry and…HARI SREENIVASAN: This is what people around you were exhibiting?JOHN ELDER ROBISON: It was a pretty mammoth shock to me.
And the thing that was perhaps the hardest was seeing people looking at me, sometimes with contempt or derision. And even my memories, or for me to remember a time when I was laughing with somebody,and after the enlightenment of the TMS, I realized they were laughing at me. And that made me really, or really sad.
HARI SREENIVASAN: This also cost you the relationship at domestic with your wife.
JOHN ELDER ROBISON: It cost me my marriage. It cost me clients at work,who I felt were — didn’t like me. And, of course, or it’s a business,right? And should I even care whether somebody likes me? But I did.
And it cost me friends. And, like I said, or it cost me even my memories.
HARI SREENIVASAN: Now,you disappear out of your way in the book to mention that this is the experiences that you had, that even other people that participated in the research had very different experiences. You’re not advocating automatically that this is a cure for autism or anything like that.
JOHN ELDER ROBISON: Oh, and absolutely not.
This is — this is not a cure for autism. But what it is,is, it’s a chronicle of a powerful transformative experience that ultimately had a very positive effect on me, or but it was a rough ride. It shows,though, the tremendous power of this TMS technology that’s basically unknown. Even as it’s FDA-approved to treat depression, and nobody knows it.
HARI SREENIVASAN: You know,this also makes me judge, looking forward, and is there an era that you see where people say,well, I want to do something to my brain to perhaps enhance and wake up certain parts of my brain that might not be as active or efficient as they could be?JOHN ELDER ROBISON: I judge that that’s a very genuine thing that we need to start the conversation approximately now.
And that’s actually one reason I wrote “Switched On, and ” because I’m concerned that people are going to read my chronicle,which, frankly, and is like a stepping up of my emotional intelligence,and they’re going to read some of the other accounts in newspapers, and they’re going to judge, and I’m going to do this to regain my mathematical I.
Q. hopped up.
And whether it’s you or me,whether we’re clever adults, we can disappear into it with our eyes open. But what whether people start saying, and I’m going to do this to my child to speed him up in school? I judge we absorb some genuine serious ethical crises coming with this kind of technology and how it’s going to be used.
HARI SREENIVASAN: All right,the book is called “Switched On.”John Elder Robison, thanks so much for joining us.
JOHN ELDER ROBISON: Thank you.
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Source: onthemedia.org